Debra Ireland

Debra aims to inspire young people to become advocates for those living with epidermolysis bullosa (EB). EB is a group of incredibly painful genetic blistering condition that affects the body’s largest organ; the skin. People living with EB are missing the essential proteins that bind the skin’s layers together, so any minor friction, movement or trauma causes it to break and blister. It’s debilitating. Excruciating. Relentless. A disease with no known cure. There are four main forms of EB that vary in severity, but all carry their own life-limiting symptoms, life-long pain and, in many cases, disability. The more severe forms of EB have a life expectancy range of early infancy to 35 years of age. EB can affect both, the external and internal lining of the skin. As a Gaisce Challenge Partner, Debra provides various ideas and resources that can help you achieve the Personal Skill and Community Involvement Challenge Areas for your Gaisce Bronze, Silver, or Gold Award. Whether you want to develop personal skills or make a positive impact in your community, we have plenty of opportunities for you to support people with EB.